Shymo’s blog: 20 years!
24-05-20 My birthday! And of course the birthday of my dear sister Zyara! That I’ve been born on Zyara’s birthday continues to amaze people haha, which I totally get! But I always enjoyed it and we always make sure to have a good time! I turned 20. That means that for already three and a […]
Shymo’s Blog: My month May
04-05-20 Today we had quite some appointments at the UMC. For an intake, CT-scan, to make a radiation mask and for a meeting with the radiotherapist. It went swiftly and smooth. The waiting time was minimal, very nice! We were even done an hour earlier than scheduled. That has not always been the case haha […]
Shymo’s Blog: Unpredictable Time
20-03-20 Today we have been to the PMC It was unexpectedly quiet but we were received with open arms. I gave quite an amount of blood for a scientific research. The objective is to investigate which substances active the infections within my body, for example the one that I had in my esophagus last December. […]
The Persistent chain
Hi Readers! My name is Zyara and as most of you already know, I’m Shymo’s sister. My mother and I are the ones who maintain Shymo’s persistent chain. The persistent chain launched in 2006 and is established by the Parents, Children & Cancer association. The association supports family’s with a child that is suffering from […]
Shymo’s blog: Quarantine
13-03-20 Today was fine, everything went smooth. They still don’t know why I have this pain in my upper back and shoulders, because of that I had to take a combination of 80mg of prednisone and diazepam over the weekend. It works as a muscle relaxant and if it works you know it’s muscle strain. […]
Shymo’s blog: Biopsy
02-03-20 I’m in bed at the hospital again, because tomorrow I will undergo a biopsy. They will make a small incision where my scar is located and from there they will remove three pieces of the tumor, about the same size as a rice grain. There’s always risks involved. For example, a bleeding could occur, […]
Shymo’s blog: where is my miracle?
01-02-20 There I am again in the hospital. The pain in my back is still getting worse, but I thought it were my muscles. After a while I started to consider it could be infection pain, but when do you reach a point that you go see a doctor for that? On Saturday I was […]
Physiotherapy with Shymo
Being Shymo’s physiotherapist, she asked me to write a blogpost. My name is Elsa and together with my colleagues from the SMC we have been treating Shymo for over two years. With this blog I’ll try to explain what we actually do for Shymo. The first intake with Shymo was on the 15th of November […]
Shymo’s Blog: Holiday Season
27-12-2019 The past five to six weeks I felt terrible. Surely because of the hospitalization, but it was already from before and even after it lasted for a while. When I came home I had to start with the treatment immediately, in fact; I already started with it while I was in the hospital. So […]
Shymo’s blog: two weeks in the hospital
19-11 This evening they’re going to run some blood tests on me. It is because I have been lying in bed for two days feeling terrible and I have no appetite at all. It’s not going well. My temperature is high and I’m in a lot of pain. We assume that it is because my […]