Shymo’s Blog: My month May
04-05-20 Today we had quite some appointments at the UMC. For an intake, CT-scan, to make a radiation mask and for a meeting with the radiotherapist. It went swiftly and smooth. The waiting time was minimal, very nice! We were even done an hour earlier than scheduled. That has not always been the case haha […]
Shymo’s Blog: Unpredictable Time
20-03-20 Today we have been to the PMC It was unexpectedly quiet but we were received with open arms. I gave quite an amount of blood for a scientific research. The objective is to investigate which substances active the infections within my body, for example the one that I had in my esophagus last December. […]
Shymo’s blog: Quarantine
13-03-20 Today was fine, everything went smooth. They still don’t know why I have this pain in my upper back and shoulders, because of that I had to take a combination of 80mg of prednisone and diazepam over the weekend. It works as a muscle relaxant and if it works you know it’s muscle strain. […]
Shymo’s blog: Biopsy
02-03-20 I’m in bed at the hospital again, because tomorrow I will undergo a biopsy. They will make a small incision where my scar is located and from there they will remove three pieces of the tumor, about the same size as a rice grain. There’s always risks involved. For example, a bleeding could occur, […]
Shymo’s blog: where is my miracle?
01-02-20 There I am again in the hospital. The pain in my back is still getting worse, but I thought it were my muscles. After a while I started to consider it could be infection pain, but when do you reach a point that you go see a doctor for that? On Saturday I was […]
Shymo’s Blog: Holiday Season
27-12-2019 The past five to six weeks I felt terrible. Surely because of the hospitalization, but it was already from before and even after it lasted for a while. When I came home I had to start with the treatment immediately, in fact; I already started with it while I was in the hospital. So […]
Shymo’s blog: two weeks in the hospital
19-11 This evening they’re going to run some blood tests on me. It is because I have been lying in bed for two days feeling terrible and I have no appetite at all. It’s not going well. My temperature is high and I’m in a lot of pain. We assume that it is because my […]
Shymo’s blog: what’s next
10-10-19 Tomorrow i’m going to the hospital. would finally get my new medicines, but I think I’ll have to wait for another week as my doctor did not receive all the required permissions just yet. I don’t mind, what does a week extra matter on top of all the months that I’ve been waiting. That […]
Shymo’s Blog: exhausted
01-09-19 You won’t believe how hectic this week was!On Monday I went to physiotherapy and after that straight onwards to the rehabilitation center for my bedsores. Tuesday I had to go yet again to the rehabilitation center and after that I went to Gyl (my brother) and Charlotte (my sister in law) for dinner; Siem […]
Shymo’s blog: the worst
06-08-19 The last couple of weeks a lot of people asked me what the worst thing is that I am going through or have gone through. For now, the worst I can think of was the recent hospitalization. What matters to me is that during the process of losing strength, functionality and feeling in my […]