01-09-19
You won’t believe how hectic this week was!
On Monday I went to physiotherapy and after that straight onwards to the rehabilitation center for my bedsores. Tuesday I had to go yet again to the rehabilitation center and after that I went to Gyl (my brother) and Charlotte (my sister in law) for dinner; Siem and I do that once in a while and we enjoy it a lot! They cook and we for example bring the dessert. During our latest visit I also gave an interview, so that was a late night! Wednesday I started the day with a radio interview on channel FunX. Yes, it was an early morning, but that doesn’t matter… Alright, it did matter a bit since I don’t sleep that much, haha. After that I went straight on to participate in the morning show of “het AD”, thereafter I went to physiotherapy and in the afternoon a photographer popped by. Thursday I started the day with an interview on Radio10 by Gerard Ekdom, after that I was another session of physiotherapy. In the afternoon there were even more things planned, but it was just too much at that point. I was exhausted and I actually still am. But as we move on to Saturday I could finally enjoy a bit of sun, I think I deserved that, right? Also my skin could use some vitamin D, you don’t get prettier by sitting a month inside, I can tell you that! So at that point I was fully enjoying my series in the sun; amazing. This week felt like a race, but I also feel satisfied. In the end I did overstep my boundaries, I noticed.
Sometimes I get the feeling that people forgot that I’m sick, I have the same sometimes. I don’t mean that in a negative sense; I’d say it is more of a compliment, because people tell me that I look good and energetic. That gives met the feeling that I have loads of energy and that I can do a lot, actually too much. For example, after having my exercise I still have the feeling that I can go to the forest; well guess what, that is not the case as I immediately fall asleep on the couch. I also noticed during all these interviews that it costs a lot of my energy. That is not the only thing where all my energy goes to: since I have two big bedsores on my back which are not healing properly and if your body doesn’t have that much energy the whole process takes a lot longer. I will safe you the pictures of my bedsores, especially for the people that don’t have a strong stomach, haha. What I’m trying to say is that not everything is always what it seems. Much more things are happening on the background regarding the foundation and getting cured. You might not always notice that, which makes sense. If you have the time, maybe it is an idea to look up what comes around with a paraplegia or dexamethasone (which is the reason for my swollen face). But I also don’t know everything the comes around with a paraplegia as everyone’s situation can be different.
Despite that this week was actually too much for me, I did enjoy it a lot! The people who shared my story were all very kind and compassionate. I also am fully convinced that I did a good job and that gave me a lot of confidence! Siem and I also laughed a lot this week, for example during the morning show. You don’t get to see what happens in advance, but it was very casual so we could joke around a bit before we went live. I was a very fun, but exhausting week. Would I do it again? Absolutely! But then I would take it a lot more into account how much energy it would cost to avoid a total breakdown at the end of the day. That is why the whole weekend I did absolutely nothing to regain my energy. Sunday I did have lunch with two friend. I noticed that it makes me feel well: having a social moment and not sitting on couch, as you can find me a lot over there.
Tip: take care of yourself and be aware, self-care is very important.
