Quarantine experiences from Shymo’s environment

Corona verhalen

Shymo has been in quarantine since March. By reading her blogs you have been able to experience a bit of how she experiences this and it has not been easy. Family and friends who can’t come over to give her a hug and who at the beginning of the quarantine only could talk to Shymo […]

The Persistent chain

Kanjerketting Shymo

Hi Readers! My name is Zyara and as most of you already know, I’m Shymo’s sister. My mother and I are the ones who maintain Shymo’s persistent chain. The persistent chain launched in 2006 and is established by the Parents, Children & Cancer association. The association supports family’s with a child that is suffering from […]

Physiotherapy with Shymo

Shymo en Elsa

Being Shymo’s physiotherapist, she asked me to write a blogpost. My name is Elsa and together with my colleagues from the SMC we have been treating Shymo for over two years. With this blog I’ll try to explain what we actually do for Shymo. The first intake with Shymo was on the 15th of November […]

Aunt Maria

Tante Maria met Shymo en Zyara

Hi, I am Maria, Shymo’s ”tante”. My father and Ilonka’s father were brothers. After WW2 my father moved to Sweden and met my Swedish mother. That´s why I am living with my family outside Stockholm, 1 400 km away from Westzaan. Through the years our family and the Korver family have been following each other […]

Bootcamp for Mo

Bootcamp voor Mo

Bootcamp for Shymo: she can’t do the sports herself, but she is definitely stronger than all the participants combined It is safe to say that Shymo has become an understanding by now in between the boundaries of the Zaanstreek (the area Shymo lives at, bordering Amsterdam). Even though the foundation Help Mo Nu! Is just […]

Emma’s explanation

Emma's Uitleg

Hi, My name is Emma and I was the biology teacher of Shymo when she was a student at ‘het Zaanlands Lyceum’. In Shymo’s story you can read that the cells of Shymo’s tumor have a mutation called H3K27M. In this blog post I will explain what this means and how this mutation probably caused […]

With Shymo to physiotherapy

Mo en Evi

Before Mo’s hospitalization a few weeks ago, I picked her up every Monday to go to physiotherapy. Physiotherapy is really important for Shymo. It’s the moment for her to have a nice workout and warm up her muscles. I often ask her if she’s excited to go and the answer is always “YES!”. Not everyone […]

Siem: “Mo is the strongest woman that I have ever met”

Mo en Siem blogpost

I’ve been Mo’s boyfriend for a year and a bit now. A year in which a lot has happened. Having a girlfriend with a severe disease can be tough, but Mo and I are still having a wonderful time. I truly enjoy it and am learning so much from Mo’s perspective of life. Fight, never […]

Through the eyes of a sister

Blogpost Zyara

Shymo, my little sister, my friend. We would have thought that you of all people would become sick? And why you? This disease only happens to people that had a long life already, right? And how will this continue? Will my little sister always remain in a wheelchair or will you be able to walk […]

Can you imagine that you best friend suffers from cancer?

Shymo en Mirte

Mo asked me to write a piece about how I feel and how I experienced the past period. I will try to be as honest as possible, so you can see my experience as best friend clearly. My name is Mirte and I’ve known Mo since third grade. We walked into the classroom, we looked […]